EPICORE

“Our project application, “Nohtawiy (my father):
Supporting Cree fathers-to-be using a culturally-appropriate, community led, and
strengths-based approach: impact on maternal, infant and paternal outcomes” was
much stronger as a result of the expertise of the Alberta SPOR Support Unit and
the consultation process. Specifically, through the Consultation and Research
Services platform and face-to-face meetings we were able to develop a more
coherent and robust data capture and analysis plan, and a more meaningful
knowledge translation framework, that made sense for both our community partners
and our research group.

Without exaggeration, through their support, I was able
to complete research tasks, organize a data repository, complete surveys and
help direct and support one of our graduate students. All that had previously
been hopelessly stuck or impossible to complete at my institution alone.”

“The Consultation and Research Services Platform
provided support in the statistical analysis and interpretation of data from our
recent study examining a new technique in echocardiography called ‘Multi-view 3D
Fusion Echocardiography. Their contribution was integral to the success of our
research. Because of their excellent quality of work I would consider them as a
first-choice for any further research-related / statistical consultations that
our group may need to request in the future.”

“The support and expertise of the Consultation Platform
has resulted in the long term follow-up surveys being into the REDCap platform,
including the ability for participants to provide electronic consent for
participation. The registry will now be available to all SCI patients in the
province, regardless of the etiology, or severity of their injury, time since
injury, or place of residence. The REDCap platform is very user friendly for
patients, clinicians, researchers, and community support teams.”

“Our project focused on validating the AHS foot care
tool that is used for screening feet of patient living with diabetes. The
Consultation and Research Services Platform were wonderful to work with on data
analysis for our research study. Their professional attitude and commitment to
executing the research activities allowed for quick completion of the results.?

“The consultation services provided guidance and helped
focus the community based project I had proposed. The team was able to help me
strategize and revise the plan to meet the budget and the study objectives.
Through the networking of the team I was able to successfully run the project
through pharmacies throughout Alberta. The project was larger, more successful,
and more efficient than projects I had been involved with before.”

“We are thankful to the SPOR Consultation and Research
Services Platform who met with us at multiple stages during the cirrhosis PRIHS
grant development phase to provide guidance around study design and methodology.
Closer to submission, Dr. Ross Tsuyuki and Dr. Yazid Al Hamarneh provided
valuable edits on the proposal which no doubt contributed to our eventual
success with our PRIHS application.”

“I was introduced to Ross Tsuyuki and the EPICORE
through the University Hospital Foundation, to help with development of a
clinical trial to examine the impact and effectiveness of introducing a nurse
practitioner for treatment of people with multiple sclerosis. The experience of
working with EPICORE to develop a MS clinical trial, come up with relevant
outcome measures, considering practicalities of clinical trial logistics has
been invaluable to a clinician such as myself. EPICORE has provided the support
and structure to design, then carry out a clinical trial.”

“EPICORE was responsible for designing the final CRFs,
development of the database, interacting with the sites for data submission and
entering the data into the database. To date, the recruitment closed as of
September 2016 and the CRF data is entered. The laboratory data will be
transferred over in the near future.”

“I wanted to have a ‘picture’ of the pain profile of our
study participants. The EPICORE staff rose to the challenge and were able to
find the right resources. Thank you!”

“Our whole team appreciates the way that Dr. Tsuyuki and
his staff have
helped us through the planning, management and analytical aspects of
dealing with our precious data. They are always attentive to the nuances of
our projects and patient with the investigators, staff and students involved.
They are helping us to overcome some tremendous hurdles and make our
projects the very best.”

“Although it took us a while to get INFORM off the
ground, working with
your team has been a pleasure – Lily in particular is responsive and on point
– I think we are going to position ourselves – with EPICORE’s help to be able
to gather and analyze this international data set in a very meaningful way.
thanks so much!”