What Investigators Are Saying About Us: Strategic Clinical Networks Research
“Our provincial spinal cord injury (SCI) team in Alberta has had the good fortune to work collaboratively with the Consultation and Research Services Platform for nearly 2 years. Our SCI team, led by SCI Physiatrist and researcher, Dr. Chester Ho, was interested in creating a provincial registry for the long term follow-up of people with an SCI, a chronic condition that results in complex care needs across the lifespan. This registry is intended to build off of the successes of a similar national registry, while providing a more patient-oriented approach.
The support and expertise of the Consultation Platform has resulted in the long term follow-up surveys being into the REDCap platform, including the ability for participants to provide electronic consent for participation. The registry will now be available to all SCI patients in the province, regardless of the etiology, or severity of their injury, time since injury, or place of residence. The REDCap platform is very user friendly for patients, clinicians, researchers, and community support teams. The Consultation team has also created reports which will be populated by the patient reported survey data. These reports will create efficiencies in our out-patient clinics and will facilitate the real-time follow-up of any concerns that are raised as a result of the follow-up questions.”
“Our project focused on validating the AHS foot care tool that is used for screening feet of patient living with diabetes. The Consultation and Research Services Platform were wonderful to work with on data analysis for our research study. Their professional attitude and commitment to executing the research activities allowed for quick completion of the results.?